Celeste Noelani
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Celeste Noelani

Aloha Aku | Aloha Mai

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schwannomatosis

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A Home To Die In

written by Celeste Noelani

Honestly, we always meant to remodel the house. We bought property in the neighborhood we wanted to live in, and the house was in rough enough shape that we could…

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September 26, 2018 3 comments
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BlogEssays

Writing Through Trauma, Finding Joy Behind Pain

written by Celeste Noelani

I’m working again, sort of. My full-time job of pain management has been successful enough that I am able to type for about and hour and a half a day,…

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September 12, 2018 4 comments
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Another Day, Another Tumor. Maybe.

written by Celeste Noelani

If I was hoping for some kind of vacation – even temporary – from pain after surgery, my nerves had other ideas. Just a few weeks after coming home from the…

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May 22, 2017 4 comments
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Three Weeks Without My Tumor

written by Celeste Noelani

And so, it is gone. From the moment I woke up in the recovery room, I knew the procedure had improved my life. And with the giddy rush of Dilaudid making the absence of…

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April 18, 2017 0 comment
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On Having the Thing That Killed My Father

written by Celeste Noelani
Selection of medical tools

My sister and I both have it, whatever it is. This condition may be rare in the general population, but it’s anything but rare in our family, at least on…

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January 18, 2017 0 comment
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BlogEssays

On the Enormous Privilege of Being a “Good” Patient

written by Celeste Noelani

It was hard not to let myself get carried away with pride when my Physical Therapist gushed over the progress I’ve been making. She noticed that my legs weren’t shaking in…

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January 13, 2017 2 comments
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Tumors, genetics, and the frightening aftermath of the US presidential election

written by Celeste Noelani
Histopathology of peripheral nerve sheath tumor (schwannoma). H & E stain.

Four days after I learned there are zero tumors inside my skull, the country I live in elected Donald Trump. I had almost no time to grapple with the long-reaching consequences…

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December 2, 2016 0 comment
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