If I was hoping for some kind of vacation – even temporary – from pain after surgery, my nerves had other ideas. Just a few weeks after coming home from the…
And so, it is gone. From the moment I woke up in the recovery room, I knew the procedure had improved my life. And with the giddy rush of Dilaudid making the absence of…
From my bed I hear the sounds of our usual family chaos. My daughter gallops across the living room floor, shaking the ceiling above me. There are downsides to a basement…
It was hard not to let myself get carried away with pride when my Physical Therapist gushed over the progress I’ve been making. She noticed that my legs weren’t shaking in…
People keep telling me to stop Googling NF2. To stay positive and maintain hope that my sciatic tumor is just a one-off deal that isn’t linked to my dad’s condition. For now…
I hear her whispering in the middle of the night, her breath tickling the back of my neck. “Mommy,” she says with a catch in her voice. “Turn around and cuddle me.”…
It is absolutely possible that the nerve sheath tumor on my right sciatic nerve is isolated, completely unrelated to the condition that ultimately took my father’s life. I know we’re…
Real talk. I knew I had my dad’s condition. There were so many clues but they were explained away or outright dismissed by (sometimes shitty) doctors and I wanted so…
Yesterday afternoon, my doctor called with results from the two hours I spent in the MRI tube on Monday. It’s not good news. I have a 3.5 cm tumor on my sciatic…
I wake up in the dark and know I am on my own. Grandma’s bed has been moved into the dining room where she can be close to Dad when everybody…
