My sister and I both have it, whatever it is. This condition may be rare in the general population, but it’s anything but rare in our family, at least on…
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It was hard not to let myself get carried away with pride when my Physical Therapist gushed over the progress I’ve been making. She noticed that my legs weren’t shaking in…
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Four days after I learned there are zero tumors inside my skull, the country I live in elected Donald Trump. I had almost no time to grapple with the long-reaching consequences…
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It has been a month since the confirmation that my sciatica is actually caused by a nerve sheath tumor. It’ll be another three weeks until I have an MRI to see if there…
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People keep telling me to stop Googling NF2. To stay positive and maintain hope that my sciatic tumor is just a one-off deal that isn’t linked to my dad’s condition. For now…
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I hear her whispering in the middle of the night, her breath tickling the back of my neck. “Mommy,” she says with a catch in her voice. “Turn around and cuddle me.”…