The last time I was on any kind of medication to treat my depression was before I got pregnant with the baby who is now a junior in high school. It’s not…
Last week, my five-year-old exclaimed that Donald Trump was the worst president of her entire life. She also had a few other choice words and I was a little caught off…
My sister and I both have it, whatever it is. This condition may be rare in the general population, but it’s anything but rare in our family, at least on…
It was hard not to let myself get carried away with pride when my Physical Therapist gushed over the progress I’ve been making. She noticed that my legs weren’t shaking in…
Four days after I learned there are zero tumors inside my skull, the country I live in elected Donald Trump. I had almost no time to grapple with the long-reaching consequences…
It has been a month since the confirmation that my sciatica is actually caused by a nerve sheath tumor. It’ll be another three weeks until I have an MRI to see if there…
People keep telling me to stop Googling NF2. To stay positive and maintain hope that my sciatic tumor is just a one-off deal that isn’t linked to my dad’s condition. For now…
I hear her whispering in the middle of the night, her breath tickling the back of my neck. “Mommy,” she says with a catch in her voice. “Turn around and cuddle me.”…
It is absolutely possible that the nerve sheath tumor on my right sciatic nerve is isolated, completely unrelated to the condition that ultimately took my father’s life. I know we’re…
Real talk. I knew I had my dad’s condition. There were so many clues but they were explained away or outright dismissed by (sometimes shitty) doctors and I wanted so…
