People keep telling me to stop Googling NF2. To stay positive and maintain hope that my sciatic tumor is just a one-off deal that isn’t linked to my dad’s condition. For now…
I hear her whispering in the middle of the night, her breath tickling the back of my neck. “Mommy,” she says with a catch in her voice. “Turn around and cuddle me.”…
It is absolutely possible that the nerve sheath tumor on my right sciatic nerve is isolated, completely unrelated to the condition that ultimately took my father’s life. I know we’re…
Real talk. I knew I had my dad’s condition. There were so many clues but they were explained away or outright dismissed by (sometimes shitty) doctors and I wanted so…
Yesterday afternoon, my doctor called with results from the two hours I spent in the MRI tube on Monday. It’s not good news. I have a 3.5 cm tumor on my sciatic…
We mostly go home for funerals. It feels fitting, of course, because funerals have always been where we saw the whole family. And when you come from an enormous, aging ʻohana, there are…
I don’t know if it’s actually going to rain. Wunderground says it will later tonight – there might even be thunder – but I still can’t tell if I should…
At the park with my five year-old, I share a smile with a Mom sitting next to me on the curb of the sand box. We start chatting about our kids,…
I lie in his arms in the middle of the night. My eyes are still swollen from crying but my face is dry now, at least. “I’m sorry,” I tell…
I started seeing a new therapist this week, which is as simple a sentence as it is a complicated reality. I’ve been alternately planning and dreading this move for a…